The Beginners Guide to PMDD
Did you just find out that you have PMDD (Premenstrual Dysphoric Disorder) or strongly suspect having it? A close friend of yours, a family member or your partner suffers from premenstrual disorders that you think might fall within the definition of PMDD? Have you searched for PMDD but don’t know where to start?
Don’t worry; you have landed in the right place. Here for you the guide that I wish I had found and read three years ago when for the first time, I heard about PMDD. I will never forget the feeling of being lost and overwhelmed by the amount of information that bombarded me and the uncertainty about what exactly to search for.
That’s why I have written this PMDD guide: I don’t want you to be in the same dark place I was in at that time. I want to save you time searching and collaging tons of information and trying to make sense of it.
Here you’ll find all the essential information you need to get an overview of this condition, packed in a guide that is easy to read and remember, without any technical-scientific or medical terms.
This information forms the basis of your knowledge, on which you can build up more detailed tips and data when all the basics are clear in your mind.
So let’s start from the basics!
The Beginners Guide to PMDD
When, a few years ago, I realised I had PMDD, I had no idea what it was… to tell the truth, I didn’t even know it existed! As I usually do, I immediately turned to my friend Google, who provided me with dozens and dozens of articles to read.
Too Much Information for me to process. I felt emotionally and mentally overwhelmed.
Try visualising the situation for a moment: you are not well, you no longer feel yourself, you have uncontrolled outbursts of anger and emotions, excruciating migraines, brain fog, physical discomfort, mood swings, cyclical depression, and much more. You have just managed to connect the dots and realised that ‘MAYBE’ these symptoms are linked to your menstrual cycle. Basically, you’re not out of your mind!
So you turn to Dr Google, who provides you with many websites and articles. You do not have either the physical or mental energies to go through them but do you have any other choice? You feel overwhelmed by the thousands of information to process and would like someone to sit there next to you, who would provide you with the essential information you need.
I bet it’s not been hard for you to put yourself in this situation…
Well, I will be that someone who gives you only the essential information to get started!
What is PMDD?
Premenstrual Dysphoric Disorder (PMDD) is a severe form of premenstrual syndrome that affects about 5.5% (1 in 20!) of women and AFAB (Assigned Female At Birth) individuals of reproductive age. It’s a cyclical, hormone-based mood disorder with psycho-behavioural and somatic symptoms that occur during the premenstrual phase (or luteal phase) and, in general, disappear with the arrival of menstruation (in some cases, the symptoms have been found to persist even during the menstrual phase).
… and What is Not
PMDD is not a hormonal imbalance! It’s a negative reaction of the brain to the normal fluctuations of estrogen and progesterone during the luteal phase of the menstrual cycle.
Symptoms of PMDD
The most common symptoms are:
- Mood/emotional changes (e.g. mood swings, feeling suddenly sad or tearful, or increased sensitivity to rejection)
- Irritability, anger, or increased interpersonal conflict
- Depressed mood, feelings of hopelessness, feeling worthless or guilty
- Anxiety, tension, or feelings of being keyed up or on edge
- Decreased interest in usual activities (e.g., work, school, friends, hobbies)
- Difficulty concentrating, focusing, or thinking; brain fog
- Tiredness or low energy; severe fatigue
- Changes in appetite, food cravings, overeating, or binge eating
- Hypersomnia (excessive sleepiness) or insomnia (trouble falling or staying asleep)
- Feeling overwhelmed or out of control
- Physical symptoms such as breast tenderness or swelling, joint or muscle pain, bloating or weight gain.
Symptoms can worsen over time or during significant events such as menarche (the first menstrual cycle), pregnancy, childbirth, abortion and perimenopause.
Individuals with PMDD present a greater risk of suicidal behaviour. Besides, many people (though not all) confirm that they have had a history of sexual abuse or depression.
A PMDD diagnosis requires at least 5 of these symptoms, one of which must be a “main emotional symptom” (one of the top four on the list). These symptoms must occur in the week (or two) before the cycle, the so-called luteal or lutein phase, and disappear with it. The symptoms must also be severe enough to adversely affect daily activities, work, school, social activities and/or interpersonal relationships.
There is no blood or saliva test to diagnose this condition. However, these tests can rule out other underlying diseases (e.g. chronic fatigue syndrome, endometriosis, fibromyalgia, hormonal imbalances, depression, bipolar disorder, etc.).
The only way to diagnose PMDD is to track your symptoms through a menstrual journal for at least two to three cycles.
Important dates to know
2013 – PMDD is added to the list of depressive disorders in the Diagnostic and Statistical Manual of Mental Disorders.
May 2019 – The PMDD is added to the International Statistical Classification of Diseases and Related Health Problems, Eleventh Revision (ICD-11). It is included among the diseases of the female urogenital system, although it is cross‐listed in the subgrouping of depressive disorders due to the prominence of mood symptomatology.
This is a significant step because it recognises PMDD as a legitimate medical condition worldwide, and, as such, it will now require diagnosis and treatment by medical professionals.
The DEFINITION of the ICD-11 is as follows:
During a majority of menstrual cycles within the past year, a pattern of mood symptoms (depressed mood, irritability), somatic symptoms (lethargy, joint pain, overeating), or cognitive symptoms (Concentration difficulties, forgetfulness) that begin several days before the onset of menses, start to improve within a few days after the onset of menses and then become minimal or absent within approximately 1 week following the onset of menses. The temporal relationship of the symptoms and luteal and menstrual phases of the cycle should ideally be confirmed by a Prospective symptom diary over at least two symptomatic menstrual cycles. The symptoms are severe enough to cause significant distress or significant impairment in personal, family, social, educational, occupational or other important areas of functioning and do not represent the exacerbation of a mental disorder.
How to get started with PMDD
1. The first thing I recommend you do is to track your period for at least two or three cycles.
Many tools can help you with this; you just have to choose what suits you best and are more likely to use, from a simple personal journal to a more sophisticated app on your phone. There is no better method than another: there is only one that works best for you.
I’ll leave you some ideas below:
- If you are more of a paper and pen type, you can track the days of your cycle and the corresponding symptoms in your journal (you can use a more sophisticated bullet journal if you are familiar with this method)
- If, however, your mobile phone knows all your most intimate secrets, you can use one of The best period tracking Apps of all time!
Personally, I combine the two methods: I track my cycles with a period tracking app on my phone, and, at the same time, I make notes of my symptoms in my bullet journal because I like to have the overall vision month by month.
2. Go to your GP to validate the diagnosis.
When you have the history of your last two/three cycles, take them with you to your general practitioner. Describe how you feel, and what PMDD means to you, show him your journal, and stay as calm as possible (I know, easier said than done!).
Many doctors still don’t know enough (or anything at all) about PMDD, so don’t be discouraged on the first try. If they don’t take you seriously, insist on and support your cause: bring with you some printable resources (visit the IAPMD website for lots of useful downloadable); ask a family member or a dear friend to come with you for moral support. As a last resort, try another doctor!
3. Consult a specialist: in this case a good gynaecologist
Again, don’t be afraid to pursue your case with tenacity and conviction. A good gynaecologist can first ascertain that there are no other underlying disorders. Then they can recommend the most suitable therapy for you according to your physique, needs and clinical history.
4. Ask for help
Never underestimate the power of being helped!
Family, friends, partners, specialised associations, peer support: whatever your closest and most credible source of help is, USE IT! Be open and honest with those around you about your condition and explain how you feel. No matter if they won’t fully understand: they will, at least, be aware of your discomfort and can help you as much as they can. Figure out what kind of help you can ask for/receive from each person and lighten your load.
For example, if your mom likes cooking and is a laundry magician, you can delegate these tasks to her. This won’t take away your troubles, but at least it’ll give you some time to rest. If you have a close friend with who you can talk openly and from which you feel understood, call her when you’re at your least. She might fully get your discomfort, or she might not: it doesn’t matter. It’s vital that you feel heard.
Make a note of the most debilitating symptoms for you and ask for help on the days when they will strike you (another good reason for keeping a menstrual journal: it will help you anticipate your dark days).
5. Connect with the PMDD Community
The feeling of being understood, accepted, and free to tell how you feel is priceless. Getting in touch with a network of women on the same journey and sharing similar experiences is one of the critical things to do! You won’t need many words to explain or excuses, you won’t have to justify your foolish behaviour, and you will feel safe to describe what’s happening inside you without any shame or misunderstanding.
There are several Facebook groups and international associations that deal with premenstrual disorders and offer support. I leave you some contacts below:
- IAPMD (International Association for Premenstrual Disorders) website and Facebook Support Groups
- Vicious Cycle website and Facebook page
- NAPS (National Association for Premenstrual Syndromes) website
- ITA-PMS (Associazione Nazionale Sindrome Premestruale e Disturbo Disforico Premestruale) website and Facebook page.
6 Useful Tips to calm down your PMDD
- Get to know your cycle! Track all your symptoms and any particular events and/or situations that may trigger or aggravate a specific symptom.
- Learn everything you can about PMDD. Read, enquire, ask. At some point, you will be the guru of your PMDD, and you will know more about it than many doctors and specialists.
- Insert the word self-compassion into your everyday vocabulary. Highlight it, put it in bold, and save it on your fridge or your phone…in short, make it the most popular word in your vocabulary!
- Explore different self-care activities. Do not be afraid to experiment; try several things until you find what works best for you.
- Peer support is essential.
- Change your lifestyle: eat a balanced diet, exercise regularly and SLEEP! Never underestimate the importance of a good night’s sleep. If it suits you, you can also consider yoga and/or meditation to help manage stress.
Common Questions About PMDD
The Last Thing You Need to Know about PMDD
- Get to know your cycle as much as you can.
- Be your own advocate and fight for your rights.
- Ask for help.
- There is no one-size-fits-all treatment: it’s a sort of trial and error until you find what works better for you.
- Explore the available resources.
- You are not alone!❤
If you’ve come this far, congratulations and thank you for your attention. I really hope this article has been helpful to you. You can bookmark it in your favourites if you wish and consult it as you need.
If you liked this article, leave me a comment below, I cannot wait to hear from you!
 ITA-PMS (Associazione Nazionale Sindrome Premestruale e Disturbo Disforico Premestruale) – https://itapms.org/.
 IAPMD (International Association for Premenstrual Disorders) – https://iapmd.org/about-pmdd/.
 DSM-5 (Diagnostic and Statistical Manual of Mental Disorders) – Wikipedia https://en.wikipedia.org/wiki/Premenstrual_dysphoric_disorder#DSM-5.
 ICD-11 (International Classification of Diseases) – https://icd.who.int/browse11/l-m/en#/http%3a%2f%2fid.who.int%2ficd%2fentity%2f1526774088.
 Harvard Medical School, article “Premenstrual dysphoria disorder: It’s biology, not a behavior choice“.
 National Association for Premenstrual Syndrome (2018) Guidelines on Premenstrual Syndrome.
 Sindrome Premestruale: la voce delle donne, di ITA-PMS.